Why do I keep talking about Self-compassion?
I have started seeing a pain psychologist because I felt my resilience of pain, medical procedures, infections and chronic illness life ba
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Actively Autoimmune
Mar 6, 20194 min read
PAIN: Is it all in my head?
"Pain is really strange" (S. Haines, 2015) When I was 13 I had my first experiences of 'chronic pain'. I had injured my ankle, and then...
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Actively Autoimmune
Nov 28, 20183 min read
Fatigue & Exercise: How do you exercise when you are exhausted 24/7?
I think when it comes down to exercising with chronic illness you have to look at your mindset. I know for me its no longer "ooh can I be mo
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Actively Autoimmune
Sep 19, 20184 min read
Sun Sensitivity & Me: 5 tips to surviving sunlight
This may be why when first reading about Lupus I was horrified. Yeah the whole immune system attacking itself causing pain, fevers, fatigue,
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Actively Autoimmune
Aug 23, 20182 min read
It's okay not to be okay: How I deal with my lupus anniversary
Anniversaries of significant events or the death of a loved one leads to that date forever marked in your brain. Each year that passes...
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Actively Autoimmune
Aug 21, 20186 min read
My Catheter Journey
I had numerous questions about my experiences with each catheter I have so far used, so thought today I would share my catheter story.
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Actively Autoimmune
Aug 7, 20184 min read
Intermittent Self-Catheterisation: What it is & my experience
So I decided to do my first catheter themed blog based on this and I also filmed a video talking about the products I found helpful whilst s
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Actively Autoimmune
Jul 10, 20182 min read
Pill Shaming: Don't judge me for taking the medication I need
They make me feel like it was ME that chose to take these tablets. Like I thought, "Ooo you know what I fancy, steroids; that round fat face
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Actively Autoimmune
Jul 4, 20183 min read
Has chronic illness turned me into a pessimist?
It's no coincidence once something goes 'wrong' many things follow. Most chronic illnesses overlap or many are connected even if it is not..
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Actively Autoimmune
Jun 27, 20182 min read
How to motivate yourself to work out with a chronic illness
A quote I posted on my Instagram this week touched on the internal battle those of us with a chronic illness or injury have to cope with on
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Actively Autoimmune
Jun 20, 20183 min read
5 Ways to cope with a setback
Forget one step forward, two steps back. Anyone with a chronic illness or recovering from a chronic injury knows that it can take months...
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Actively Autoimmune
May 31, 20182 min read
Hope for the best, prepare for the worst: How I get ready for an appointment
Seeing a new Doctor, Specialist or Clinician can be a huge source of stress. It's often after an agonising wait, both for the appointment an
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Actively Autoimmune
May 9, 20184 min read
My Lupus Story: How I Was Diagnosed
Once upon a time (April 2017) in a country far far away (Australia) I got a cold. A very undramatic start to my story.
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Actively Autoimmune
May 2, 20182 min read
Chronic illness and Relationships
I joke that I am not the girl my boyfriend signed up for and that he should claim for false advertising.
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Actively Autoimmune
Mar 21, 20183 min read
5 Things I have learn't with chronic illness
Cry laughing and doing crosswords..everything I have learnt during my time so far with a chronic illness
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Actively Autoimmune
Mar 14, 20183 min read
6 Things not to say to someone with a chronic illness
Have you tried eating meat? Drinking water? It's great to hear your friend's sister's auntie found Tumeric helped her disease..
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