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Why do I keep talking about Self-compassion?
I have started seeing a pain psychologist because I felt my resilience of pain, medical procedures, infections and chronic illness life ba
Actively Autoimmune
May 22, 20195 min read
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PAIN: Is it all in my head?
"Pain is really strange" (S. Haines, 2015) When I was 13 I had my first experiences of 'chronic pain'. I had injured my ankle, and then...
Actively Autoimmune
Mar 6, 20194 min read
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Fatigue & Exercise: How do you exercise when you are exhausted 24/7?
I think when it comes down to exercising with chronic illness you have to look at your mindset. I know for me its no longer "ooh can I be mo
Actively Autoimmune
Nov 28, 20183 min read
390 views
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Sun Sensitivity & Me: 5 tips to surviving sunlight
This may be why when first reading about Lupus I was horrified. Yeah the whole immune system attacking itself causing pain, fevers, fatigue,
Actively Autoimmune
Sep 19, 20184 min read
471 views
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It's okay not to be okay: How I deal with my lupus anniversary
Anniversaries of significant events or the death of a loved one leads to that date forever marked in your brain. Each year that passes...
Actively Autoimmune
Aug 23, 20182 min read
162 views
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My Catheter Journey
I had numerous questions about my experiences with each catheter I have so far used, so thought today I would share my catheter story.
Actively Autoimmune
Aug 21, 20186 min read
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Intermittent Self-Catheterisation: What it is & my experience
So I decided to do my first catheter themed blog based on this and I also filmed a video talking about the products I found helpful whilst s
Actively Autoimmune
Aug 7, 20184 min read
774 views
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Pill Shaming: Don't judge me for taking the medication I need
They make me feel like it was ME that chose to take these tablets. Like I thought, "Ooo you know what I fancy, steroids; that round fat face
Actively Autoimmune
Jul 10, 20182 min read
249 views
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Has chronic illness turned me into a pessimist?
It's no coincidence once something goes 'wrong' many things follow. Most chronic illnesses overlap or many are connected even if it is not..
Actively Autoimmune
Jul 4, 20183 min read
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How to motivate yourself to work out with a chronic illness
A quote I posted on my Instagram this week touched on the internal battle those of us with a chronic illness or injury have to cope with on
Actively Autoimmune
Jun 27, 20182 min read
611 views
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5 Ways to cope with a setback
Forget one step forward, two steps back. Anyone with a chronic illness or recovering from a chronic injury knows that it can take months...
Actively Autoimmune
Jun 20, 20183 min read
77 views
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Hope for the best, prepare for the worst: How I get ready for an appointment
Seeing a new Doctor, Specialist or Clinician can be a huge source of stress. It's often after an agonising wait, both for the appointment an
Actively Autoimmune
May 31, 20182 min read
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My Lupus Story: How I Was Diagnosed
Once upon a time (April 2017) in a country far far away (Australia) I got a cold. A very undramatic start to my story.
Actively Autoimmune
May 9, 20184 min read
498 views
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Chronic illness and Relationships
I joke that I am not the girl my boyfriend signed up for and that he should claim for false advertising.
Actively Autoimmune
May 2, 20182 min read
218 views
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5 Things I have learn't with chronic illness
Cry laughing and doing crosswords..everything I have learnt during my time so far with a chronic illness
Actively Autoimmune
Mar 21, 20183 min read
66 views
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6 Things not to say to someone with a chronic illness
Have you tried eating meat? Drinking water? It's great to hear your friend's sister's auntie found Tumeric helped her disease..
Actively Autoimmune
Mar 14, 20183 min read
129 views
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